Heather's Story

My journey began in early 2023, when I noticed that my left foot was causing me to stumble and trip. By early June I was experiencing what I could only explain as ‘little electric shocks’ in my left arm. By August a heaviness in my left arm and leg. After several Doctors appointments and tests, ALS was first mentioned in October and finally confirmed in December. Obviously this was devastating news to me and my family, but ALS Canada has helped us navigate our way through this ever changing landscape that has become our lives.

To date, ALS Canada has provided me with equipment, helping keep me mobile and comfortable. From shower seats and bed rails, to a mobility scooter and electric wheelchair, Saving our family thousands of dollars. As my health continues to deteriorate, we know that ALS Canada will be there to provide, not just the medical equipment needed, but support through their various support groups and webinars.

ALS is a devastating disease that takes away our plans and dreams for the future, but it does give us time. Maybe not the amount of time we had hoped for, but time to appreciate life, moments and loved ones. And, time to make a difference. Through this golf tournament, we can all make a difference by providing funds to ALS Canada to purchase more equipment and help those who are on their own journey living with this awful disease.

What Is ALS?

ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal chord. ALS causes progressive paralysis by disrupting brain-muscle, communication, impairing movement and essential functions. 
 
Meaning, the brain no longer communicates with the muscles of the body. Overtime as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow and eventually breathe.
 
There is no cure and very limited treatment options, leading to rapid progression. 

Our Goal

Our goal is to raise $10k and money raised will directly support ALS Canada’s mission to provide vital equipment and resources to individuals and families affected by ALS. This includes outfitting homes with specialized medical and mobility equipment, helping to make daily living more accessible, comfortable, and dignified for those struggling with this progressive disease.

ALS Canada

Founded in 1977, ALS Canada is a registered charity whose work is powered by generous donors who share our vision of a world free of ALS. 
 
Grounded in and informed by the ALS community, ALS Canada bridge information,programs, research and services to people affected by this devastating disease. 

- via als.com

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